Hi!
My unique way of looking at the world has been sought after by patient organizations, health systems, and pharmaceutical companies among others.
I’m a quick learner and enjoy research. I love working on finding solutions for problems at an individual, organizational, and societal level. I thrive while solving puzzles, especially those associated with things I’m passionate about such as increased health literacy, patient engagement, and quality improvement. Most of all, I enjoy knowing that the work I’m doing changes hearts, minds, lives, and the world.
How might we change the world together?
Current Work
Communications Specialist - The Trans Counseling Advocacy Research and Education (CARE) Collaborative
August 2021 – Current
- Created a social media presence and non-academic website for the Trans CARE Collaborative, including writing all web copy
- Grew followers to multiple thousands in over a year by regular posting, sharing others' posts, and following a social media strategy I developed
- Recruited new members interested in joining the transgender-affirming psychology group
- Raised awareness of the issues facing transgender and nonbinary people of color, especially related to mental health access and care
Sex Educator, Writer, and Consultant - Self & Freelance
April 2009 – Current
- Created, launched, and continue to manage an award-winning website Chronic Sex, including writing all web copy and most articles
- Created, launched, and continue to manage a social media presence, accumulating over 11k followers in a few years' time
- Created, launched, wrote, recorded, edited, and produced an award-winning podcast to discuss related topics, interviewing top experts in their fields
- Developed, designed, and presented curricula and multiple workshops to a wide variety of audiences including health care providers, sex educators, colleges, and laypeople
- Managed guest posters, editing their articles
- Collaborated with multiple affiliates and colleagues to promote their work
- Conceptualized a research project for which I received a grant
- Mentored upcoming sex educators
- Conceptualized a research project from scratch where I surveyed over 200 patients about healthcare discussions between patients and healthcare providers, handling promotion while receiving a grant from The Effing Foundation for this work
- Wrote pieces for clients such as the US Pain Foundation's INvisible Magazine, Our Lives, Healthline, Health Central, Achieve Clinical, Janssen, and The Tempest. Ghostwritten healthcare articles for Visiture.
- Provided social media and website management for Gender Station (now defunct), developing social media handles from scratch, writing blog posts, and editing the website
- Served as a sensitivity reader for multiple children's book projects
- Served as a content management intern for MD Collab, creating social media and written pieces around Carbon Health’s start-up EHR system
- Covered multiple conferences in writing and social media, including the American College of Rheumatology Annual Meeting (2017, 2020), Woodhull Sexual Freedom Summit (2017), and ePharma Summit (2016).
- Working with client Elevate Advocacy to
- Develope and enact a social media marketing & communications plan, and assist in managing the Elevate Advocacy LinkedIn page
- Incorporate health equity, cultural awareness and competency, and tenets of inclusive healthcare into strategies for pharma & biotech clients, with a focus on clinical trials
- Investigate & research various organizations, focused on community engagement & collaboration, improved access, and patient engagement / empowerment
Previous Work Experience
DEIB Content Writer - PowerToFly
Dec 2022 – Jul 2023
- Wrote video scripts and lesson text for PowerToFly’s DEIB Membership product PowerUp, including conceptualizing and developing the SHRM-certified Disability in the Workplace course from scratch and writing both scripts and lesson text.
- Wrote scripts for short videos — known as Quick takes — to explain the basics about DEIB, social justice, the LGBTQ+ community, the disability and neurodivergent community, the BIPOC community, and more.
Provider Directory Coordinator, Communities - Included Health
Sept 2022 – Dec 2022
- Searched for culturally competent providers across the United States, vetting and adding them to our internal private directory
- Audited existing provider and clinic profiles, updating with pertinent information including new contact information, which providers were friendly to LGBTQ+ and Black patients, and more
- Prepared for go-live with new clients by conducting outreach to new providers in specific areas, who took specific insurance plans, etc.
- Improved the ways we collect and share data on providers via Salesforce
- Collaborated with Care Coordinators from the Communities offering and the greater IH community on difficult provider searches
- Advocated on behalf of members with insurance plans and providers as needed
- Provided education to providers and clinics around LGBTQ+ and Black health equity issues
LGBTQ+ Care Coordinator - Included Health
Nov 2021 – Aug 2022
- Interacted regularly with members, providing guidance around healthcare and insurance as well as case management services.
- Connected members with resources, providers, and education
- Searched for and vetted culturally competent health care providers for members of the LGBTQ+ community
- Educated parents of LGBTQ+ youth on the importance of competent care
- Advocated on behalf of members with insurance plans, provider offices, providers, and others as needed
Chronic Disease Prevention Communication Specialist - Wisconsin Department of Health Services
Apr 2020 – Nov 2021
- Developed and implemented strategies for communication and outreach to support the following program areas under the Chronic Disease Prevention Unit: Heart Disease and Stroke, Diabetes Prevention and Control, Nutrition, and Physical Activity
- Designed and edited complex documents, reports, and presentations
- Maintained and regularly updated the CDPU web pages in Drupal
- Composed regular social media posts, working with internal communications officers and following government guidelines while crafting engaging content
- Planned and assisted in handling logistics for virtual meetings, trainings, and webinars
- Maintained email and mailing lists for the public and specific stakeholders
- Assisted with grant management, editing and developing deliverables, and more
- Provided training and technical assistance to CDC grantees working with the State of Wisconsin
- Handled public health information with a health equity lens, centering marginalized communities
- Participated on internal and external workgroups, including the Wisconsin Diabetes Advisory Group, the Wisconsin Heart Health Community of Practice, the DHS DEI Culture Team (as a Policy Analyst), DHS Data Quality Workgroup, DHS LGBTQ Health Steering Committee, BCHP Health Data Equity Focus Group, and the Health Equity Advisory Team (HEAT)
Learn more on LinkedIn.
Education
Certificate – Gaming Accessibility Fundamentals
Microsoft
November 2023
Certificate – Patient Leadership
Health Union
August 2023
Certificate – Human Rights Education Training
US Institute of Diplomacy and Human Rights
August 2023
Certificate – Patient Advocacy & Storytelling
National Patient Advocate Foundation
July 2023
Certificate – Translational Science Specialization
University of Michigan & Coursera
July 2023
Certificate – Foundations of Health Equity Research
Johns Hopkins University & Coursera
July 2023
Certificate – Wilderness First Aid Specialization
University of Colorado System & Coursera
July 2023
Certificate – Medical Terminology Specialization
Rice University & Coursera
July 2023
Certificate – Leading Diverse Teams
University of California, Irvine & Coursera
May 2023
Certificate – Leading Diverse Teams & Organizations
University of Michigan & Coursera
March 2023
Utica College
MS in Health Care Administration, 2017
Capstone: "Effectively Measuring Patient Engagement: An Investigation Into Patient Engagement And The Patient Activation Measure"
Carroll College
BA in Religious Studies, 2010
Double minor in History & Politics
Grants
Grants Received
$2500
To help patients receive the best care, especially when it comes to sexual and genital health, we need to create tools to improve how we all talk about sex in the exam room.
Grants Previously Worked On
CDC
- CDC-RFA-20-2004: Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act, Public Law 115-406, for Public Health Programs to Address Alzheimer’s Disease and Related Dementias
- DP18-1815: Improving the Health of Americans Through Prevention and Management of Diabetes, Heart Disease, and Stroke
- DP18-1817: Innovative State and Local Public Health Strategies to Prevent and Manage Diabetes, Heart Disease, and Stroke
- DP21-2102: Paul Coverdell National Acute Stroke Program
Recent Publications
- Bass, A.R., Chakravarty, E., Akl, E.A., Bingham, C.O., Calabrese, L., Cappelli, L.C., Johnson, S.R., Imundo, L.F., Winthrop, K.L., Arasaratnam, R.J., Baden, L.R., Berard, R., Bridges, S.L., Jr., Cheah, J.T.L., Curtis, J.R., Ferguson, P.J., Hakkarinen, I., Onel, K.B., Schultz, G., Sivaraman, V., Smith, B.J., Sparks, J.A., Vogel, T.P., Williams, E.A., Calabrese, C., Cunha, J.S., Fontanarosa, J., Gillispie-Taylor, M.C., Gkrouzman, E., Iyer, P., Lakin, K.S., Legge, A., Lo, M.S., Lockwood, M.M., Sadun, R.E., Singh, N., Sullivan, N., Tam, H., Turgunbaev, M., Turner, A.S. and Reston, J. (2023), 2022 American College of Rheumatology Guideline for Vaccinations in Patients With Rheumatic and Musculoskeletal Diseases. Arthritis Care Res. https://doi.org/10.1002/acr.25045
- Schultz, G. (2022). Chapter in Keeping It Real with Arthritis: Stories from Around the World, compiled by Effie Koliopoulos. (link)
- Contributed to the 2021 JIA Guidelines by the American College of Rheumatology (link)
- Toupin-April, K, Décary, S., de Wit, M., Meara, A., Barton, J., Fraenkel, L., Li, L., Brooks, P., Shea, B., Stacey, D., Légaré, F., Lyddiatt, A., Hofstetter, C., Proulx, L., Christensen, R., Voshaar, M., Suarez-Almazor, M., Boonen, A., Meade, T., March, L., Jull, J., Campbell, W., Alten, R., Morgan, E., Kelly, A., Kaufman, J., Hill, S., Maxwell, L., Guillemin, F., Beaton, D., El-Miedany, Y., Mittoo, S., Westrich Robertson, T., Bartlett, S., Singh, J., Mannion, M., Ismail Nasef, S., de Souza, S., Boel, A., Adebajo, A., Arnaud, L., Gill, T., Moholt, E., Burt J.,, Jayatilleke, A., Hmamouchi, I., Carrott, D., Blanco, F., Mather, K., Maharaj, A., Sharma, S., Caso, F., Fong, C., Fernandez, A., Mackie, S., Nikiphorou, E., Jones, A., Greer-Smith, R., Sloan, V., Akpabio, A., Strand, V., Umaefulam, V., Monti, S., Melburn, C. Abaza, N., Schultz, K., Stones, S., Kiwalkar, S., Srinivasalu, H., Constien, D., King, L., and Tugwell, P. (In progress). Endorsement of the OMERACT Core Domain Set for shared decision making interventions in rheumatology: results from a multi-stepped consensus-building approach. Seminars in Arthritis and Rheumatism, Volume 51, Issue 3, 2021. Pages 593-600. ISSN 0049-0172, https://doi.org/10.1016/j.semarthrit.2021.03.017.
- Schultz, K. (2020). Appendices in Sex-Interrupted: Igniting Intimacy While Living With Illness or Disability, by Zink. I., and Palter, J.
- Schultz, K. (2018). Patient Activist chapter in Bio-Citizenship: The Politics of Bodies, Governance, and Power, edited by Happe, K., Johnson, J., and Levina, M.
Recent Presentations
- Grabert, R., and Schultz, G. (2022). SOGI 101: Understanding Sexual Orientation and Gender Identity to Improve Patient Care. Presented virtually on behalf of MATEC-WI.
- Schultz, G., and additional panel representatives. (2022). Accessibility Roundtable for Colorado State University. Presented virtually.
- Andert, B., and Schultz, G. (2022). LGBTQ+ Health Disparities. Presented for the Wisconsin DHS Chronic Disease Prevention monthly partner call virtually.
- Schultz, G., (2022). Crip Sex: Having the Accessible Sex You Didn't Know You Needed. Presented for Albion College virtually.
- Schultz, G., and additional panel representatives. (2022). Panel on Transgender Health for Colorado State University. Presented virtually.
- Schultz, G. (2022). Video with Access Community Health Centers on barriers to trans-affirming healthcare. Presented virtually.
Selected Citations & Interviews
- Sharma AE, Mann Z, Cherian R, Del Rosario JB, Yang J, Sarkar U. Recommendations From the Twitter Hashtag #DoctorsAreDickheads: Qualitative Analysis [published correction appears in J Med Internet Res. 2020 Nov 9;22(11):e25511]. J Med Internet Res. 2020;22(10):e17595. Published 2020 Oct 28. doi:10.2196/17595
- “Real People. Real Stories.”: Self-Advocacy and Collective/Connective Action on the Digital Platform, The Mighty by Sarah M. Parsloe, PhD
- Young, Disabled and LGBT+ Voices, Identities and Intersections edited by Alex Toft & Anita Franklin
- Becoming Disabled: Forging a Disability View of the World by Jan Doolittle Wilson
- Nothing for Us Without Us: Building Inclusive Clinical Trials for the LGBTQ Community
- Marriage Institutions Aren’t Just Sexist — They’re Ableist And Disrespectful To People With Disabilities
- Having a Chronic Illness Doesn’t Mean Giving Up Sex
- Righting misrepresentation: Folx with disabilities can be romantic, sexual partners
Selected Bylines
- Advocating for Your Health: Tips from Four Experts
- Plastic Straw Bans Are Not Fair to People with Disabilities, and Here’s What We Can Do About It
- How Some Transgender Folks Are Grappling With Gender Dysphoria During the Pandemic
- Dating With a Disability is Dangerous
- 11 Health Care Mistakes You Don’t Know You’re Making (and how to avoid them)
- Are Childhood Trauma and Chronic Illness Connected?
- The Mysterious 'Little Hill' and 11 Other Sex Topics School Didn’t Cover
Selected Awards
- 2017 – Healthline’s Best Podcasts - Invisible Illness
- 2017 – Healthline Invisible Illness Champion
- 2013 – Silver Arthritis Ambassador, Arthritis Foundation
Current Committees
- 2020–Present – Patient Research Partner, OMERACT
Current Associations
- Breakthrough Crew
- Chronic Illness Bloggers Network
- Cochrane
- Disability Leadership Institute
- GLMA
- Out in Tech
- Out Professionals
- Pleasureable
- Savvy Cooperative
- The Society for Participatory Medicine (SP4M)
- Trans Journalists Association
- Trans Writers Union
- Transgender Professional Association for Transgender Health (TPATH)
- TransTech Social
Current Service
- 08/2023–Present – Volunteer, Game Content Triggers Database
- 08/2023–Present – Steering Committee Member, Engaging the Public from Sexual and Gender Minority Communities to Co-Develop Research Questions about Living with Pain
- 07/2023–Present – Volunteer, Equality Ohio
- 07/2022–Present – Member At Large and Speaker, TransOhio
- 12/2022–Present – Patient Representative, JIA CME Working Group with the American College of Rheumatology
- 12/2022–Present – Member of the Stakeholder and Advisory Group, Identifying Social factors that Stratify Health Opportunities and Outcomes
- 1/2021–Present – Member, Trans Counseling Advocacy Research and Education (CARE) Collaborative
- 4/2020–Present – Patient Research Partner, OMERACT
- 2014–Present – Volunteer, Creaky Joints/Global Healthy Living Foundation
Skills
- Public speaking
- Workshop design and execution
- Social media
- Social networking
- Research
- Writing
- Newsletters
- Sexuality education
- Community outreach
- Communication
- Advocacy
- Patient experience
- Innovation
- Equity
- Meeting facilitation
- Empathy
Selected Continuing Education Completed
- Addressing Implicit Bias in Organizational Structures
- Advancing Health Equity in Rare Disease
- Advancing Racial and Social Justice
- Applying a Racial Justice Lens to Social Marketing
- Beyond the Binary: Health Resources for Sexual and Gender Minorities
- Black Communication: Supporting Health Black Families
- Breaking Down Barriers Through Storytelling
- Building Access-Centered Cultures
- Building Communication Access: Language and Cultural Considerations
- Bystander Intervention 2.0: Conflict De-escalation
- Dismantling Settler Colonialism and Ableism: Disability Justice
- From Beyond Our Borders: Providing Multilingual and Multicultural Health Information
- Health Equity and Environmental Justice 101
- Land Acknowledgement 101
- Language Matters: How to Talk about Native Nations
- Leading Diverse Teams and Organizations (Coursera Certificate)
- Moving at the Speed of Trust: Disability Justice and Transformative Justice
- Providing Cultural Competency and Effective Communication for the Hmong Population
- Redlining and Chronic Disease: The Legacy of Racism on the Built Environment and on Health
- Reducing Inequalities Between LGBTQ Adolescents and Cisgender, Heterosexual Adolescents
- Sex Educator Sessions: Practicing Disability Inclusiveness with Ducky Doolittle and Robin Mandell
- Social Determinants of Health: From Barriers to Opportunities
- Solidarity is a Practice: Anti-Racist Work for MMIND (Mad, Mentally Ill, Neurodivergent, Disabled) Folks
- The Emotional Toll of Anti-Immigrant and Anti-Latino Rhetoric
- The Racial Wealth Gap: Historical Roots and Systemic Barriers
- Trans Visibility Is A Repro Health & Justice Issue: Not a Cissue
- Transforming Public Health Through Leadership, Justice, and Racial Healing
- Trauma-Informed Care, ACEs, and the Life Course
- Unconscious Bias at Work: Creating a Culture Where Everyone Belongs
- Yes, All Genders: How to Normalize and Include Trans Bodies and Pleasure in Adult Sex Ed
Interests & Topics
- Ableism
- BDSM & Chronic Illness/Pain/Trauma
- Decentering the Kyriarchy in Medicine
- Disability Rights
- Doctor-Patient Relationship
- Equity, Social Justice, and DEI
- Fandoms/Pop Culture & Illness
- Health Literacy
- Intersectionality
- LGBTQIA+ Health
- Medical Innovation
- Mental & Physical Illness Interactions
- Organizational Change
- Patient Activation Measure
- Patient Engagement
- Post-Traumatic Stress
- Quality of Life with Chronic Illness
- Relationships & Illness/Pain/Disability
- Rheumatology
- Self-Care & Self-Love
- Sex & Chronic Illness/Disability
- Trauma
- Writing
Websites & Projects
Personal Projects
- Not Standing Still's Disease: The musings & wit of a chronic illness fighter on the world, medicine, and ways to improve our lives for the better.
- Chronic Sex: A sexuality education site focused on providing information and resources around sex, self-esteem, relationships, and disability.
- More Questions Podcast: The podcast where more questions are always welcome. [Hoping to start in fall 2023]
- Spooky Sconnie: A podcast that covers everything about Wisconsin, from true crime & the paranormal to cryptids and wonderfully weird history. [Now ended]
Projects I've Participated In
- The INTEGRATE-pain Delphi process (2023)
- Contributed to the 2021 JIA Guidelines by the American College of Rheumatology (link)