CV

Educator, Writer, Researcher, and Consultant — Self-employed & Freelance

April 2009 – Current

• Designed, launched, and continue to manage an award-winning website and podcast (Chronic Sex) focused on sex and disability, including writing all web copy and most articles. Developed a social media strategy for my sex ed site, accumulating over 11k followers in a few years' time. Managed guest posters, editing their articles. Collaborated with multiple affiliates and colleagues to promote their work. Mentored upcoming sex educators.
• Designed and presented curricula and 8+ workshops to a wide variety of audiences including health care providers, sex educators, colleges, and laypeople.
• Conceptualized a research project from scratch surveying over 200 patients about healthcare discussions between patients and healthcare providers and handling promotion while managing a $2500 grant from The Effing Foundation for this work.
• Freelance reporting and writing for clients including the U.S. Pain Foundation's INvisible Magazine, Healthline, Ask Men, and Well+Good. Ghostwritten healthcare articles for Visiture.
• Provided social media and website management for Gender Station (now defunct), developing social media handles from scratch, writing blog posts, and editing the website.
• Served as a sensitivity reader for multiple children's book projects on childhood disability.
• Tested multiple video & computer games.
• Served as a content management intern for MD Collab (Nov 2017 - April 2018), creating social media and written pieces around Carbon Health’s start-up EHR system.
• Covered multiple conferences in writing and social media, including the American College of Rheumatology Annual Meeting (2017, 2020), Woodhull Sexual Freedom Summit (2017), and ePharma Summit (2016).
• Nov 2022-Feb 2024: Contracted in tandem with a team of rheumatologists and the American College of Rheumatology to create Continuing Medical Education (CME) for pediatricians to recognize juvenile arthritis. Spearheaded the creation of resources for parents and families as well as community dissemination efforts.
• Sept 2023-Current: Working as a contracted researcher and consultant for Elevate Advocacy. Increased awareness of the company via LinkedIn, where I increased the number of followers by over 600 in four months. Other duties include data collection, research on federal policy, and stakeholder mapping.

DEIB Content Writer - PowerToFly

Dec 2022 – Jul 2023

• Wrote video scripts and lesson text for PowerToFly’s DEIB Membership product PowerUp.
• Created and developed the SHRM-certified Disability in the Workplace course from scratch, writing scripts and lesson text in 4 weeks.
• Wrote scripts for 30 short videos in 6 months to share basics about DEIB, social justice, the LGBTQ+ community, the disability and neurodivergent community, the BIPOC community, and more.
• Worked on LMS development via Open EdX.

Communications Specialist - The Trans Counseling Advocacy Research and Education (CARE) Collaborative

Aug 2021 – Dec 2022

• Created a social media presence and non-academic website for the Trans CARE Collaborative, including writing all web copy.
• Grew followers to multiple thousands in over a year by regular posting, sharing others' posts, and following a social media strategy I developed.
• Recruited new members interested in joining the transgender-affirming psychology group.
• Raised awareness of the issues facing transgender and nonbinary people of color, especially related to mental health access and care.

Provider Directory Coordinator, Communities - Included Health

Sept 2022 – Dec 2022

• Added and audited IH's internal directory of over 2,000 culturally competent healthcare providers. Improved data collection and sharing via Salesforce.
• Collaborated with 40+ Care Coordinators from the Communities offering and the greater Included Health community on equity-focused education and difficult provider searches. Provided health equity-focused education to providers and clinics, improving their understanding of LGBTQ+ and Black health.
• Interacted regularly with members, providing guidance around healthcare and insurance as well as case management services. Connected members with resources, providers, and education. Advocated on behalf of members with insurance plans, provider offices, providers, and others.

LGBTQ+ Care Coordinator - Included Health

Nov 2021 – Aug 2022

• Interacted regularly with members, providing guidance around healthcare and insurance as well as case management services.
• Connected members with resources, providers, and education.
• Searched for and vetted culturally competent health care providers for members of the LGBTQ+ community.
• Educated parents of LGBTQ+ youth on the importance of competent care.
• Advocated on behalf of members with insurance plans, provider offices, providers, and others as needed.

Chronic Disease Prevention Communication Specialist - Wisconsin Department of Health Services

Apr 2020 – Nov 2021

• Developed and implemented strategies for communication and outreach to support the following program areas under the Chronic Disease Prevention Unit: Heart Disease and Stroke, Diabetes Prevention and Control, Nutrition, and Physical Activity.
• Designed and edited complex documents, reports, and presentations. Maintained and regularly updated the CDPU web pages in Drupal. Maintained email and mailing lists for the public and specific stakeholders. Planned and assisted in handling logistics for virtual meetings, trainings, and webinars.
• Composed regular social media posts, working with internal communications officers and following government guidelines while crafting engaging content. Handled public health information with a health equity lens, centering marginalized communities. Worked on LMS development via an internal LMS.
• Assisted with grant management, including editing and developing deliverables. Provided training and technical assistance to CDC grantees working with the State of Wisconsin.
• Participated on internal and external workgroups, including the Wisconsin Diabetes Advisory Group, Wisconsin Heart Health Community of Practice, DHS DEI Culture Team, DHS Data Quality Workgroup, DHS LGBTQ Health Steering Committee, BCHP Health Data Equity Focus Group, and the Health Equity Advisory Team (HEAT).

Learn more on LinkedIn.

Certificate – Clinical Care for Autistic Adults
Harvard Medical School
October 2024

Certificate – Clinical Trial Diversity Training
Trial Equity
September 2024

Certificate – Gaming Accessibility Fundamentals
Microsoft
November 2023

Certificate – Patient Leadership
Health Union
August 2023

Certificate – Human Rights Education Training
US Institute of Diplomacy and Human Rights
August 2023

Certificate – Patient Advocacy & Storytelling
National Patient Advocate Foundation
July 2023

Certificate – Translational Science Specialization
University of Michigan & Coursera
July 2023

Certificate – Foundations of Health Equity Research
Johns Hopkins University & Coursera
July 2023

Certificate – Wilderness First Aid Specialization
University of Colorado System & Coursera
July 2023

Certificate – Medical Terminology Specialization
Rice University & Coursera
July 2023

Certificate – Leading Diverse Teams
University of California, Irvine & Coursera
May 2023

Certificate – Leading Diverse Teams & Organizations
University of Michigan & Coursera
March 2023

Utica College
MS in Health Care Administration, 2017
Capstone: "Effectively Measuring Patient Engagement: An Investigation Into Patient Engagement And The Patient Activation Measure"

Carroll College
BA in Religious Studies, 2010
Double minor in History & Politics

Grants Received

The Effing Foundation

$2500

To help patients receive the best care, especially when it comes to sexual and genital health, we need to create tools to improve how we all talk about sex in the exam room.

Grants Previously Worked On

CDC

• CDC-RFA-20-2004: Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act, Public Law 115-406, for Public Health Programs to Address Alzheimer’s Disease and Related Dementias
• DP18-1815: Improving the Health of Americans Through Prevention and Management of Diabetes, Heart Disease, and Stroke
• DP18-1817: Innovative State and Local Public Health Strategies to Prevent and Manage Diabetes, Heart Disease, and Stroke
• DP21-2102: Paul Coverdell National Acute Stroke Program

• Shea B., Pardo J.P., Grosskleg S., Beaton D.E., Conaghan P., Goettsch W., Hofstetter C., Maxwell L., Musaus J., Ollendorf D., Schultz G., et al. Increasing uptake through collaboration in the development of core outcome sets: Lessons learned at OMERACT 2023. Semin Arthritis Rheum. 2024 Mar 16;66:152438. doi: 1016/j.semarthrit.2024.152438. Epub ahead of print. PMID: 38555726.
• Maxwell, L.J., Wright, G.C., Schultz, G., et al. Embracing unity at OMERACT: Valuing equity, promoting diversity, fostering inclusivity. Seminars in Arthritis and Rheumatism, Volume 66, 2024, 152422, ISSN 0049-0172, https://doi.org/10.1016/j.semarthrit.2024.152422.
• Bass, A.R., Chakravarty, E., Akl, E.A., et al. 2022 American College of Rheumatology Guideline for Vaccinations in Patients With Rheumatic and Musculoskeletal Diseases. Arthritis Care Res. 2023. https://doi.org/10.1002/acr.25045

• Kalloo, A., Johnson, W., Kileen, S., and Schultz, G. (2024) Patient Perspectives: Progressing Health Equity and Empowering Underserved Communities. Presented at the 2^nd Health Equity in Clinical Trials Congress.
• Wright, G., Simon, L., Guillemin, F., Tugwell, P., Maxwell, L., Hofstetter, C., and Schultz, G. (2023). Embracing Unity: Advancing Equity, Diversity, and Inclusion. Presented at OMERACT 2023.
• Tunis, S., Pardo Pardo, J., Musaeus, J., Strand, V., Ollendorf, D., Stevens, R., Goettsch, W., and Schultz, G. (2023). Championing Core Outcome Sets for Impactful Results. Presented at OMERACT 2023.
• Schultz, G. (2023). Navigating Disability in the Workplace. Presented virtually to for TransTech Summit.
• Schultz, G., and additional panel representatives. (2023). Is Disability Part of Your DEI Planning and Engagement in Rare Disease? Presented virtually for X-Talks and ICON.
• Schultz, G., and additional panel representatives. (2023). Great Health Debates, S3E1: Disability Culture and Visibility. Presented virtually for Boston Congress of Public Health.
• Schultz, G., and additional panel representatives. (2023). QueerCME Sexual Health panel. Presented virtually.
• Grabert, R., and Schultz, G. (2022). SOGI 101: Understanding Sexual Orientation and Gender Identity to Improve Patient Care. Presented virtually on behalf of MATEC-WI.
• Andert, B., and Schultz, G. (2022). LGBTQ+ Health Disparities. Presented for the Wisconsin DHS Chronic Disease Prevention monthly partner call virtually.

Additional presentations

• Sharma AE, Mann Z, Cherian R, Del Rosario JB, Yang J, Sarkar U. Recommendations From the Twitter Hashtag #DoctorsAreDickheads: Qualitative Analysis [published correction appears in J Med Internet Res. 2020 Nov 9;22(11):e25511]. J Med Internet Res. 2020;22(10):e17595. Published 2020 Oct 28. doi:10.2196/17595
• “Real People. Real Stories.”: Self-Advocacy and Collective/Connective Action on the Digital Platform, The Mighty by Sarah M. Parsloe, PhD
• Young, Disabled and LGBT+ Voices, Identities and Intersections edited by Alex Toft & Anita Franklin
• Becoming Disabled: Forging a Disability View of the World by Jan Doolittle Wilson
• Nothing for Us Without Us: Building Inclusive Clinical Trials for the LGBTQ Community
• Marriage Institutions Aren’t Just Sexist — They’re Ableist And Disrespectful To People With Disabilities
• Having a Chronic Illness Doesn’t Mean Giving Up Sex
• Righting misrepresentation: Folx with disabilities can be romantic, sexual partners

Additional citations and interviews

Additional appearances

• Advocating for Your Health: Tips from Four Experts
• Plastic Straw Bans Are Not Fair to People with Disabilities, and Here’s What We Can Do About It
• How Some Transgender Folks Are Grappling With Gender Dysphoria During the Pandemic
• Dating With a Disability is Dangerous
• 11 Health Care Mistakes You Don’t Know You’re Making (and how to avoid them)
• Are Childhood Trauma and Chronic Illness Connected?
• The Mysterious 'Little Hill' and 11 Other Sex Topics School Didn’t Cover

Additional bylines

• 2017  – Healthline’s Best Podcasts - Invisible Illness
• 2017  – Healthline Invisible Illness Champion
• 2013  – Silver Arthritis Ambassador, Arthritis Foundation

Additional awards

• Breakthrough Crew
• Chronic Illness Bloggers Network
• Cochrane
• DCI Network
• Disability Leadership Institute
• GLMA
• Out in Tech
• Out Professionals
• Pleasureable
• Savvy Cooperative
• The Society for Participatory Medicine (SP4M)
• Trans Journalists Association
• Trans Writers Union
• Transgender Professional Association for Transgender Health (TPATH)
• TransTech Social

Past memberships, associations, and service

• 2024–Present – Member, OpenNotes Lab Insight Panel
• 2024–Present – Patient Representative, JIA Guideline Team, American College of Rheumatology
• 2024–Present – Co-Chair, EDI Working Group, OMERACT
• 08/2023–Present – Volunteer, Game Content Triggers Database
• 08/2023–Present – Steering Committee Member, Engaging the Public from Sexual and Gender Minority Communities to Co-Develop Research Questions about Living with Pain
• 07/2023–Present – Volunteer, Equality Ohio
• 07/2022–Present – Member At Large and Speaker, TransOhio
• 12/2022–2024 – Patient Representative, JIA CME Working Group with the American College of Rheumatology
• 12/2022–Present – Member of the Stakeholder and Advisory Group, Identifying Social factors that Stratify Health Opportunities and Outcomes
• 4/2020–Present – Patient Research Partner, OMERACT
• 2014–Present – Volunteer, Creaky Joints/Global Healthy Living Foundation

Past memberships, associations, and service

• Public speaking
• Workshop design and execution
• Social media
• Social networking
• Research
• Writing
• Newsletters
• Sexuality education
• Community outreach
• Communication
• Advocacy
• Patient experience
• Innovation
• Health equity
• Meeting facilitation
• Empathy

• Addressing Implicit Bias in Organizational Structures
• Advancing Health Equity in Rare Disease
• Advancing Racial and Social Justice
• Applying a Racial Justice Lens to Social Marketing
• Beyond the Binary: Health Resources for Sexual and Gender Minorities
• Black Communication: Supporting Health Black Families
• Breaking Down Barriers Through Storytelling
• Building Access-Centered Cultures
• Building Communication Access: Language and Cultural Considerations
• Bystander Intervention 2.0: Conflict De-escalation
• Dismantling Settler Colonialism and Ableism: Disability Justice
• From Beyond Our Borders: Providing Multilingual and Multicultural Health Information
• Health Equity and Environmental Justice 101
• Land Acknowledgement 101
• Language Matters: How to Talk about Native Nations
• Leading Diverse Teams and Organizations (Coursera Certificate)
• Moving at the Speed of Trust: Disability Justice and Transformative Justice
• Providing Cultural Competency and Effective Communication for the Hmong Population
• Redlining and Chronic Disease: The Legacy of Racism on the Built Environment and on Health
• Reducing Inequalities Between LGBTQ Adolescents and Cisgender, Heterosexual Adolescents
• Sex Educator Sessions: Practicing Disability Inclusiveness with Ducky Doolittle and Robin Mandell
• Social Determinants of Health: From Barriers to Opportunities
• Solidarity is a Practice: Anti-Racist Work for MMIND (Mad, Mentally Ill, Neurodivergent, Disabled) Folks
• The Emotional Toll of Anti-Immigrant and Anti-Latino Rhetoric
• The Racial Wealth Gap: Historical Roots and Systemic Barriers
• Trans Visibility Is A Repro Health & Justice Issue: Not a Cissue
• Transforming Public Health Through Leadership, Justice, and Racial Healing
• Trauma-Informed Care, ACEs, and the Life Course
• Unconscious Bias at Work: Creating a Culture Where Everyone Belongs
• Yes, All Genders: How to Normalize and Include Trans Bodies and Pleasure in Adult Sex Ed

Full list, including conferences attended

• Ableism
• BDSM & Chronic Illness/Pain/Trauma
• Decentering the Kyriarchy in Medicine
• Disability Rights
• Doctor-Patient Relationship
• Equity, Social Justice, and DEI
• Fandoms/Pop Culture & Illness
• Health Literacy
• Intersectionality
• LGBTQIA+ Health
• Medical Innovation
• Mental & Physical Illness Interactions
• Organizational Change
• Patient Activation Measure
• Patient Engagement
• Post-Traumatic Stress
• Quality of Life with Chronic Illness
• Relationships & Illness/Pain/Disability
• Rheumatology
• Self-Care & Self-Love
• Sex & Chronic Illness/Disability
• Trauma
• Writing

Personal Projects

• Not Standing Still's Disease: The musings & wit of a chronic illness fighter on the world, medicine, and ways to improve our lives for the better.
• Chronic Sex: A sexuality education site focused on providing information and resources around sex, self-esteem, relationships, and disability.
• More Questions Podcast: The podcast where more questions are always welcome. [Hoping to start in fall 2023]
• Spooky Sconnie: A podcast that covers everything about Wisconsin, from true crime & the paranormal to cryptids and wonderfully weird history. [Now ended]

Projects I've Participated In

• The INTEGRATE-pain Delphi process (2023)
• Contributed to the 2021 JIA Guidelines by the American College of Rheumatology (link)