Written Work

Grayson's hand as he writes in a notebook

Books

Schultz, G. (2022). Chapter in Keeping It Real with Arthritis: Stories from Around the World, compiled by Effie Koliopoulos. (link)

Schultz, K. (2020). Appendices in Sex-Interrupted: Igniting Intimacy While Living With Illness or Disability, by Iris Zink and Jenny Palter. (link)

Schultz, K. (2018). Patient Activist chapter in Bio-Citizenship: The Politics of Bodies, Governance, and Power, edited by Kelly E. Happe, Jenell Johnson, and Marina Levina. (link)

Academic Writing & Research Work

Shea B., Pardo J.P., Grosskleg S., Beaton D.E., Conaghan P., Goettsch W., Hofstetter C., Maxwell L., Musaus J., Ollendorf D., Schultz G., Stevens R., Strand V., Tugwell P., Williamson P., Tunis S., and Simon L.S. Increasing uptake through collaboration in the development of core outcome sets: Lessons learned at OMERACT 2023. Semin Arthritis Rheum. 2024 Mar 16;66:152438. doi: 10.1016/j.semarthrit.2024.152438. Epub ahead of print. PMID: 38555726.

Maxwell, L.J., Wright, G.C., Schultz, G., Grosskleg, S., Barton, J.L., Campbell, W., Guillemin, F., Hofstetter, C., Shea, B.J., Simon, L.S., Adebajo, A., Barnabe, C., Goel, N., Hurley, P., Nikiphorou, E., Petkovic, J., and Tugwell, P. Embracing unity at OMERACT: Valuing equity, promoting diversity, fostering inclusivity. Seminars in Arthritis and Rheumatism, Volume 66, 2024, 152422, ISSN 0049-0172, https://doi.org/10.1016/j.semarthrit.2024.152422.

Naye, F., Toupin-April, K., de Wit, M., LeBlanc, A., Dubois, O., Boonen, A., Barton, J.L., Fraenkel, L., Li, L.C., Stacey, D., March, L., Barber, C.E.H., Stewart Hazlewood, G., Guillemin, F., Bartlett, S.J., Berthelsen, D.B., Mather, K., Arnaud, L., Akpabio, A., Adebajo, A., Schultz, G., Sloan, V.S., Gill, T.K., Sharma, S., Scholte-Voshaar, M., Caso, F., Nikiphorou, E., Ismail Nasef, S., Campbell, W., Meara, A., Christensen, R., Suarez-Almazor, M.E., Jull, J.E., Alten, R., Morgan, E.M., El-Miedany, Y., Singh, J.A., Burt, J., Jayatilleke, A., Hmamouchi, I., Blanco, F.J., Fernandez, A.P., Mackie, S., Jones, A., Strand, V., Monti, S., Stones, S.R., Lee, R.R., Nielsen, S.M., Evans, V., Srinivasalu, H., Gérard, T., LeBlanc Demers, J., Bouchard, R., Stefan, T., Dugas, M. Bergeron, F., Beaton, D., Maxwell, L.J., Tugwell, P., Décary, S. Core Outcome Measurement Set for Shared Decision Making in Rheumatic and Musculoskeletal Conditions: A Scoping Review to Identify Candidate Instruments. Seminars in Arthritis and Rheumatism, 2023, 152344, ISSN 0049-0172, https://doi.org/10.1016/j.semarthrit.2023.152344.

Décary S, de Wit M, Naye F, Barton JL, Fraenkel L, Li LC, Brooks P, Stacey D, Maxwell LJ, Campbell W, Hofstetter C, Voshaar M, Meara A, Christensen R, Boonen A, Suarez-Almazor ME, Meade T, March L, Jull JE, Alten R, Morgan EM, Stewart Hazlewood G, Barber CEH, Guillemin F, El-Miedany Y, Mittoo S, Robertson TW, Bartlett SJ, Singh JA, Mannion M, Nasef SI, Boel A, Adebajo A, Arnaud L, Gill TK, Moholt E, Burt J, Jayatilleke A, Hmamouchi I, Berthelsen DB, Blanco FJ, Mather K, Maharaj A, Sharma S, Caso F, Beaton D, Shea B, Fong C, Fernandez AP, Mackie S, Nikiphorou E, Jones A, Greer-Smith R, Sloan VS, Akpabio A, Strand V, Lee RR, Umaefulam V, Monti S, Abaza N, Schultz G, Stones S, Gossec L, Nielsen SM, Cavallo S, Srinivasalu H, Constien D, Evans V, Tugwell P, Toupin-April K. Consensus on the definitions and descriptions of the domains of the OMERACT Core Outcome Set for shared decision making interventions in rheumatology trials. Semin Arthritis Rheum. 2024 Jan 15;65:152381. doi: 10.1016/j.semarthrit.2024.152381. Epub ahead of print. PMID: 38306813.

Benavent, D., Carmona, L., Lopez-Olivo, M.A., Hill, C.L., Westrich-Robertson, T., Goel, N., Strand, V., Shea, B., Grosskleg, S., Leong, A., Hofstetter, C., Bingham, C., Meyer, D., Constien, D., Berthelsen, D.B., Schultz, G., de Groot, I., Weiner, J., Mather, K., de Wit, M., Böhm, P., Cembalo, S.M., Tugwell, P., Bruera, S., Suarez-Almazor, M.E. Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set. Seminars in Arthritis and Rheumatism, Volume 64, 2024, 152343, ISSN 0049-0172. https://doi.org/10.1016/j.semarthrit.2023.152343.

Balay-Dustrude, E., Christiansen, R., Consolaro, A., Goh, Y. I., Gottlieb, B., Horgan, B., Horonjeff, J., Maxwell, L., Munro, J., Pan, N., Schultz, G., Swart, J., Toupin-April, K., and Morgan, E.M. Defining Patient Perception of Overall Well-Being and Disease Activity in the OMERACT Juvenile Idiopathic Arthritis Core Domain Set: A Report from the JIA Working Group. http://dx.doi.org/10.2139/ssrn.4571058

Bass, A.R., Chakravarty, E., Akl, E.A., Bingham, C.O., Calabrese, L., Cappelli, L.C., Johnson, S.R., Imundo, L.F., Winthrop, K.L., Arasaratnam, R.J., Baden, L.R., Berard, R., Bridges, S.L., Jr., Cheah, J.T.L., Curtis, J.R., Ferguson, P.J., Hakkarinen, I., Onel, K.B., Schultz, G., Sivaraman, V., Smith, B.J., Sparks, J.A., Vogel, T.P., Williams, E.A., Calabrese, C., Cunha, J.S., Fontanarosa, J., Gillispie-Taylor, M.C., Gkrouzman, E., Iyer, P., Lakin, K.S., Legge, A., Lo, M.S., Lockwood, M.M., Sadun, R.E., Singh, N., Sullivan, N., Tam, H., Turgunbaev, M., Turner, A.S. and Reston, J. (2023), 2022 American College of Rheumatology Guideline for Vaccinations in Patients With Rheumatic and Musculoskeletal Diseases. Arthritis Care Res. https://doi.org/10.1002/acr.25045

Toupin-April, K, Décary, S., de Wit, M., Meara, A., Barton, J., Fraenkel, L., Li, L., Brooks, P., Shea, B., Stacey, D., Légaré, F., Lyddiatt, A., Hofstetter, C., Proulx, L., Christensen, R., Voshaar, M., Suarez-Almazor, M., Boonen, A., Meade, T., March, L., Jull, J., Campbell, W., Alten, R., Morgan, E., Kelly, A., Kaufman, J., Hill, S., Maxwell, L., Guillemin, F., Beaton, D., El-Miedany, Y., Mittoo, S., Westrich Robertson, T., Bartlett, S., Singh, J., Mannion, M., Ismail Nasef, S., de Souza, S., Boel, A., Adebajo, A., Arnaud, L., Gill, T., Moholt, E., Burt J.,, Jayatilleke, A., Hmamouchi, I., Carrott, D., Blanco, F., Mather, K., Maharaj, A., Sharma, S., Caso, F., Fong, C., Fernandez, A., Mackie, S., Nikiphorou, E., Jones, A., Greer-Smith, R., Sloan, V., Akpabio, A., Strand, V., Umaefulam, V., Monti, S., Melburn, C. Abaza, N., Schultz, K., Stones, S., Kiwalkar, S., Srinivasalu, H., Constien, D., King, L., and Tugwell, P. (2021). Endorsement of the OMERACT Core Domain Set for shared decision making interventions in rheumatology: results from a multi-stepped consensus-building approach. Seminars in Arthritis and Rheumatism. Vol 51, Issue 3. Pgs 593-600. (link)

Schultz, K. (2017). Effectively Measuring Patient Engagement: An Investigation into Patient Engagement and the Patient Activation Measure. (link)

Schultz, K. (2016). Market with Me, Not at Me A Patient’s Plea for Inclusionary Strategic Marketing in Healthcare. (link)

ORCID ID: 0000-0002-3858-510X | Google Scholar